Die Internationale GBS/CIDP Foundation wird von uns im deutschsprachigen Raum vertreten
"The GBS/CIDP Foundation International is working for a future when no one with Guillain-Barre syndrome (GBS), chronic inflammatory demyelinating polyneuropathy (CIDP), and related syndromes such as multifocal motor neuropathy (MMN) suffers alone and that everyone has access to the right diagnosis and the right treatment, right away.
Our commitment is our story. It all began with eight people sitting around a dining room table 30 years ago. Through the hard work and determination of our Founder, Estelle Benson, the Foundation grew larger and has become able to support thousands of patients, family members, friends and caregivers. The Foundation is committed to continuing to provide the experience of care and support so indicative of the original grassroots mission.
Our commitment is to support those touched by GBS | CIDP and variants so that every patient has access to an early and accurate diagnosis, proper treatment, and the opportunity for a full recovery." https://www.gbs-cidp.org
GBS & CIDP Initiative Schweiz
"Unser Ziel ist es, Menschen die an GBS oder CIDP erkranken und deren Angehörige mit Informationen über die Krankheit und mit der Erfahrungen anderer Patienten zu versorgen" http://www.gbsinfo.ch